Happy Easter! He is RISEN! What hope we have in that!
God has really been speaking to me, and that's been pretty hard to do lately. I am so off schedule. I have not been to church in two weeks with walking pneumonia. I've been in survival mode. But in what I have read and heard on Christian radio and online and through friends, I know God is clearly speaking to me. I am supposed to remember that I can and should rely on Him alone. He has provided help and support in places that I did not expect. And in some places, it was taken away for a bit. He has also been trying to get me to see the bigger picture ~ that we need to do our best while we are here but not to tie or try to tie ourselves too closely to this place. It's not our home. So with that in mind, I am trying to do all I can for Andrew but know and remember that God loves him so much more than me. He knows what is going on, and He will guide me if I will seek that and obey. I am totally not through with the lessons, but some have been so clear lately.
Andrew will probably have his first treatment at home this week. Our insurance approved him. He is getting more and more worn down. Not knowing a whole lot about how this comes on (because he was probably born with this), I am not sure if he will keep wearing down more and more until he gets where he needs to be in his IgG numbers. I feel that he should have probably already been sicker and in the hospital with IV antibiotics, from what I've read. Running and not missing school except for appointments is most likely not the norm. Anyway, we will be learning a lot this week. And then Andrew will be off to Richmond with his track team. He is taking the week off, after another terrible run today. He has nothing to draw from anymore - and it's not from lack of training or trying. It's painful to watch. He also has a weak leg, and we decided today that rest is the best thing for the next few days. He has come to this understanding himself. That's a big deal.
It has been tough - watching him fall more and more behind. But I know that he will come out of this. I just wish it would all hurry up and be fixed. He is on three weeks of antibiotics. Once I finally figured out his cough was back and had Dr. Zimmerman look at him, I could hear the wheezing loudly across the room when he took deep breaths! And that is on tons of other meds. So we hope those will keep him from getting worse while we try to get the IgG levels up!
I don't know if I mentioned it before, but his levels were up over 100 points before his treatment in Charlotte. The doctor is hoping to raise it 200 with each treatment - maybe a little less with the weekly treatments. I thought to myself, "Here we go with the numbers again." But my life is all about numbers right now with Sam - who was at 33 a little bit ago running around! They can sure be overwhelming! And Sam is good most of the time. Peter just got some new running shoes and feels like he has new feet! Will just got back from his 8th grade trip to Wilmington, and we are so happy he is home.
Thanks to those of you who pray and send encouragement through email, calls, and the mail! It all helps, and we appreciate it. This song is one my friend Lisa told me to look up. I had not heard it. But I heard it three times this week while going to do Sam's lunch shot. I know that was not a coincidence!
Happy Easter!
Love,
Wendi
"Blessings"
Laura Story
We pray for blessings
We pray for peace
Comfort for family, protection while we sleep
We pray for healing, for prosperity
We pray for Your mighty hand to ease our suffering
All the while, You hear each spoken need
Yet love us way too much to give us lesser things
Cause what if Your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights
Are what it takes to know You’re near
What if trials of this life are Your mercies in disguise
We pray for wisdom
Your voice to hear
And we cry in anger when we cannot feel You near
We doubt Your goodness, we doubt Your love
As if every promise from Your Word is not enough
All the while, You hear each desperate plea
And long that we'd have faith to believe
Cause what if Your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights
Are what it takes to know You’re near
And what if trials of this life are Your mercies in disguise
When friends betray us
When darkness seems to win
We know the pain reminds this heart
That this is not, this is not our home,
It's not our home
Cause what if Your blessings come through raindrops
What if Your healing comes through tears
And what if a thousand sleepless nights
Are what it takes to know You’re near
What if my greatest disappointments
Or the aching of this life
Is the revealing of a greater thirst this world can’t satisfy
And what if trials of this life
The rain, the storms, the hardest nights
Are Your mercies in disguise
Saturday, April 23, 2011
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