Sunday, December 9, 2018

Merry Christmas ~ 2018



April D. Green Photography, 2018




I wrote last year that I knew this year would be tough.  I think I was thinking of Andrew's brain surgery mostly and that by Christmas all would be well again.  Well, I was wrong.  This year was actually much tougher than I imagined.  But I can say (and have said it lately) that God has been here for every single step.  And while everything does not look like it will be resolved by Christmas, I do know God won't leave.  I know that for sure.

Last Christmas, we spent the day with Pete's family at his sister's house.  His dad was in a wheelchair and looked so much worse than he had just a little bit before.  Pete and I decided we would go and visit every chance we got.  We started that after the first of the year and decided we needed to go more often.  Then his dad fell at the end of January.  I remember Pete's sister Meg calling him right as church started that Wednesday evening.  She was very upset and leaving her home to go up to Roanoke, VA, where their dad was being transferred by ambulance.  I got Pete out of church, and we rushed home to pack while our church family stayed and prayed.  He rushed up to Roanoke in the dark,, while I tried to get someone on the phone who would update us on Pop's condition.  I finally got to a nurse who knew Pop was there.  Then I hit the HIPAA wall - which I knew was coming.  So I asked him to tell Pop his family was coming and that we loved him.  And he said he would tell him.  Meg got there first, and Pete got there soon after.  His dad's neck was broken, and he was in a great deal of pain.  His cancer was so much worse, but he wanted to leave palliative care to go home to die.  So he came back home that Saturday by ambulance.  Pete came home, and Meg made a chart to cover his care at home with their mom.  Peter and I went on Monday.  Peter had to leave Tuesday afternoon for a job interview, so I was there until Wednesday night alone.  While Peter was there, he did every single thing Pop needed.  He was so helpful and so good at helping.  Peter and I had stopped at a little store a few minutes before Pop's house.  We both felt inadequate to help - and a little afraid.  But we prayed and just jumped right in - not really knowing what to expect.  I was so overwhelmed and so busy that I did not realize all that was going on with Pete's mom.  I knew things were not right, but my attention was more on his dad.  Pete came on Thursday to trade with me, and he and Meg were there with their dad when he died on Friday afternoon.  I cried my eyes out after I left Thursday and thought about turning around - but I had to get home to Andrew and Sam.  I had kissed Pop and told him I loved him.  He was able to tell me he loved me.  He had told me a few things earlier that morning when Meg had taken Sarah to get some coffee in downtown Floyd.  He told me things about me and the boys.  I will never forget the encouraging things he said.  I was coming back Saturday, in two days, but I knew he would not be there.




After the funeral, Pete's mom tried to stay at her house by herself, but she would call Meg to come and get her.  But then she would want to go right back home.  Pete brought her to our house some, and she even went to Laurinburg for a little bit with Charlie.  To make a long story short, she has been staying with us since late spring.  She has Sam's room and hallway with his bathroom.  Sam has graciously moved upstairs and is spread out all around.  Sarah has dementia and goes back to the doctor this week.  It's hard.  And it's very sad to see. It's really taken over my whole family's life right now.

In April, Peter moved to Charlotte to start a new job.  We miss him, but he seems to be doing well.  He lives with a friend who lived at our house for a few months.  Julianna finished her graduate degree, so she is back in Charlotte working.  That works out well for them!



At the end of April, Pete was in a horrible wreck.  He could not sleep and was going to do one of his cleaning jobs around 2:00 am.  He called me at a little after 2:00 am and told me he could not call 911 himself.  I hopped up and called 911 for him and got Will to take me to the accident -  not knowing what happened or if he was okay.  We went the wrong way - which ended up being better for what we saw - and came upon a big truck that had run a stop sign and hit the front corner of Andrew's smaller Ford Ranger, that Pete was driving because his car was in the shop.  The front end and tire got most of the impact.  It could have been so much worse.  The other guy was fine with his air bags, but Pete was bruised and cut and actually had a crack in his kneecap and neck.  Andrew's truck was totally demolished, and it was scary to see Pete leaned up against the firetruck with blood all over his head and face and down his clothes.  An ambulance finally came to check him out (we still have operator problems), but he had Will drive us to the hospital.  He passed out in the ER, and that's when the doctor finally started doing some tests.  We did not leave until he was checked out well.  We are so thankful, and we praise God for keeping both men from getting hurt worse.




Andrew graduated from Appalachian in May.  Even though he has gone to school for six years, he graduated with one degree and one internship short of another full degree.  He had his EMU testing in July.  It was supposed to be a week or so that stretched into two weeks.  He had a bad seizure that dislocated his shoulder (again) before they put the electrodes IN his brain, so he did not have another for eight days.  It was a long two weeks with lots of prayer and lots of waiting and frustration.  He finally had two seizures that were deemed enough for the information they needed.  We were all tired and frustrated and concerned.  We think a medication oversight was the reason he had the seizure that morning.  We hope we are never in that situation, but I learn more each time about how you have to keep up with every single thing yourself.  In spite of all of that, all the information was obtained.  We know that was all God.

Following that hospital stay, we waited to see if he was a candidate for brain surgery (even though those were two smaller brain surgeries to put the electrodes in and take them out).  He was, and we finally got on the schedule for October.  The time in between was awful and dark and can be found on Andrew's blog - some of the details, but not all.  We ended up taking him totally off one seizure med that we truly believe set off a huge depression, that he had never had to deal with before.  And we are thankful for those who stepped up to help him through those dark months - doctors, a counselor, and my family who took him over to Abingdon and kept him busy during that time.  We also appreciate the others who knew and prayed.  It was as if all of the years of struggles finally crowded in all at once and just about took over.  We are so thankful he is still recovering from all of that, and we trust it will all be used for good at some point.

Andrew had his surgery on Wednesday, October 24, and we were home on Saturday.  We dropped Sarah off at Meg's on our way to Duke on Tuesday and picked her up on our way home Saturday.  It was a very tough week for a lot of reasons.  I felt a weight lifted after the surgery and the doctor reported how it had gone.  He is a good Christian man, and that he prays over Andrew and the surgery made a huge difference to us.  Seeing the brain pictures he took with his iPhone was amazing.  But Andrew was not fully back to himself, so it was difficult to help without helping too much.  He did have a few visitors, and that helped him a lot.




So far, Andrew has not had any seizures.  He remains on two seizure medications with the hope of cutting them down in the spring.  He has been back to the neurologist and the neurosurgeon at Duke for his post op appointments.  He helps watch Sarah during part of the day, and he will look for a job soon to keep him busy as he applies to graduate schools.  He cannot run yet, but he walks several miles a day.  We still pray for complete healing and for all of the scary side effects to go away and stay away for good.  We appreciate our doctors in Boone and Charlotte for all of their help during all of this.  God certainly has blessed us with some great doctors who really care.

During the time Andrew was over in Abingdon, he got to spend a lot of time with my family and see and check on my grandmother a lot while she was at home with Hospice.  Grandmother fell in her yard and broke her arm about the time Andrew went to Duke in July.  She was 93 and lived alone until that fall.  One thing led to another, and she ended up home with Hospice.  She died on October 7.  I had been going over once or twice a week to see her and check on Andrew.  I was sick that morning, the 7th, and did not go to church.  I decided after lunch that I really needed to go see her that day and not wait until Monday afternoon.  I got home in the evening, and my brother called me sometime later that night to tell me she was gone.  She was resting with her favorite channel, the Hallmark channel, playing.  Whitney and Laura were spending the night with her.  Whitney noticed her breathing had changed and was checking on her and asking her if she was okay.  And then she was just gone - to Heaven.  Just like that.  I miss her so much already, but I would not wish her back in that hospital bed.  She had so many visitors and friends and family care for her in her last weeks.  She would just smile, and her blue eyes would twinkle.  And that's how I remember Grandmother.  I am sad, but not for her.  She is in Heaven with so many she has not seen in a long time.  One of the last things she asked me was if Andrew had had his surgery - and had Ben been paid for mowing - and did I get some more of her books to read.  She was still checking on everyone else.

So this year has been hard.  And while we have had some great moments, we have had some of the toughest I've ever known.  There have been more things that have been heavy weights ~ some things with Sam and Will.  There have been times of dealing with mistakes made - things that are hard to watch and I just pray lessons were learned that won't be forgotten.  There are concerns looming on the horizon about Sam and his learning disabilities and how to handle high school next year.  Sam did get a continuous glucose monitor, and we love having the fire truck siren go off in the middle of the night when he is dangerously low.  We don't know what we did before!  I have seen struggles with others' behavior and hurt for those hurt.  There have been so many funerals to attend - and so many that we could not attend.  We have lost loved ones and friends.  But God has made a way through the little and the big struggles.  And He still is.  My goal this year is the read the Bible through again.  I've already ordered a new Bible to do just that.  I think that goal will help me a lot.  This past year has been the year with the most prayers.  It is close to another year in the recent past, but this one definitely required even more prayers on my part.

Will and Sam on Pop's tractor.  The tractor was sold in an online auction two days before Pop died.  It did not leave his house until the day after he died.  I was thankful he was not watching all of his tools and equipment leave, while he was stuck in a hospital bed watching out the big window.  But he was happy those things would be going to good homes, knowing he would never need them again.  Just still thinking of others in his last days.



And even though I still have a handful of thank you notes to write, my family wants to thank everyone who has helped us this year in so many ways.  We have been so blessed by gifts, encouragement, notes, messages, and, most of all, prayers.  We appreciate it all so much.  It's been very overwhelming in the best way.  To see people visit my grandmother.  To see people take time to come to her service.  To see people step up and keep Andrew busy and contact him and check on him.  To have people tell me something they remember that lets me know God knows where I am at the moment.  To get a card in the mail or a text or message.  To just be encouraged or told we are prayed for and prayed over.  It all counts in those blessings.  And it all has helped.

I pray as we are in the Christmas season that my family's year will somehow bring glory and honor to God.  He is good.  Always good.  He has made a way through the most difficult of situations. My testimony is not about what I do- but what God can do through me AND in spite of me.  I hope others see that I depend on Him.  I choose to.  I must.  He is the only One who never changes.  He loves me the most.  Christmas is about the birth of Jesus, so it's a great time to come to know Him or rededicate our commitment to trust Him and follow Him.  That's what I am doing.

One of my main verses this year has been Romans 12:12.  It's been my aim and still will be.

"Be joyful in hope, patient in affliction, faithful in prayer."  Romans 12:12

I sang "It Is Well" at Grandmother's service.  My knees were shaking, but all of the words came out.  I believe it is well only because of God.  There is no other way to have peace.  We don't always sing all of the verses, so I am copying them here.  And if you've never read the story behind the song, please Google it.  I am going to see Pop and Grandmother again.  What glorious hope there is in knowing that!  And I believe God will be with us in the end of 2018 and in in 2019 and beyond.  What a wonderful truth!  Merry Christmas!


"It Is Well"  Horatio Spafford


  1. When peace, like a river, attendeth my way,
    When sorrows like sea billows roll;
    Whatever my lot, Thou hast taught me to say,
    It is well, it is well with my soul.
    • Refrain:
      It is well with my soul,
      It is well, it is well with my soul.
  2. Though Satan should buffet, though trials should come,
    Let this blest assurance control,
    That Christ hath regarded my helpless estate,
    And hath shed His own blood for my soul.
  3. My sin—oh, the bliss of this glorious thought!—
    My sin, not in part but the whole,
    Is nailed to the cross, and I bear it no more,
    Praise the Lord, praise the Lord, O my soul!
  4. For me, be it Christ, be it Christ hence to live:
    If Jordan above me shall roll,
    No pang shall be mine, for in death as in life
    Thou wilt whisper Thy peace to my soul.
  5. But, Lord, ’tis for Thee, for Thy coming we wait,
    The sky, not the grave, is our goal;
    Oh, trump of the angel! Oh, voice of the Lord!
    Blessed hope, blessed rest of my soul!
  6. And Lord, haste the day when the faith shall be sight,
    The clouds be rolled back as a scroll;
    The trump shall resound, and the Lord shall descend,
    Even so, it is well with my soul.


April D. Green Photography 2018

Tuesday, November 13, 2018

Andrew Update - November 13, 2018






Thank you for all of the prayers for Andrew!  He is doing well, and we are so very thankful!

Andrew's surgery went well on Wednesday, October 24.  We brought him home on Saturday, October 27!  That is just amazing.

We took Andrew on Tuesday to check in.  He got into a good room for the night.  Our hotel was just across the street, so that was very helpful - to be able to run back and forth and take turns.  His surgery was Wednesday, and he was not done until evening.  Actually, it was faster than we expected - they got started later than we thought.  So when the surgeon came out to talk to us, I hoped nothing was wrong.  He was smiling and had brain pictures on his iPhone.  They got everything they had identified and everything they could around it - without leaving deficits.  He was able to move his arm and leg in recovery, so that was great.  Part of what they took out was not normal brain tissue, so it seemed that it was the likely culprit of the seizures.  They still worked to get everything finished up, and we got to see him later in ICU.  We were so thankful, and we felt a weight lifted off our shoulders, literally.  We really felt the prayers.  I know I teetered on the edge a few times - how could I not?  But I know they pulled me back ~ those prayers.

The hospital stay was uneventful.  Andrew had run in a road race in Charlotte on Saturday, October 13.  He won for the third time in a row.  The people in charge treat him like a celebrity.  They know a lot of his struggles and knew he was going to have brain surgery - after already having two in the summer.  They were so happy to see him and let him know!  We were able to meet a woman from Florida who has a scholarship in her son's name.  Her son died of complications from CVID.  He also had seizures.  Andrew has been the recipient of the scholarship two different times, so it was so wonderful to talk to her in person and for her to meet Andrew and see how much her work has helped.  We also got to talk to Dr. Patel, his immune system doctor (for lack of a better title!), about getting his immune system pumped up before surgery.  He did a two week infusion and then another one week infusion a couple of days before we went to Duke.  He has had no issues with infection.  It was good to have that advice face to face.  Dr. Patel also got him Carolina Panthers tickets for last Sunday.  He and Peter went to the game.  It was a good game to attend with great donated seats!





One day, he threw up a few times, but he was okay after Ginger Ale - probably the pain medication.  He has been able to get by mostly with Tylenol.  Last Friday, he had an episode that he thinks lasted about two minutes that felt like a seizure was coming.  Sam called me, and I flew home.  But it stopped.  The doctors say that is reported a lot and is normal after this surgery.  They gave him valium to put under his tongue if it happens again.  He has not had any other issues.  Pain has been very minimal.  He has been tired, but that was to be expected.  He has been on some good long walks and even a hike.  He just cannot run for six weeks - no bouncing up and down.

This past Friday, Andrew got his sutures out (poor Dr. Zimmerman and one of our sweet nurses).  He could finally wash his hair Sunday and probably feels like a new person!

We are thankful for everyone who has prayed and helped us in so many ways.  We have had everything we need and not had to worry about our hotel or food or medical bills at all this last round.  We are so thankful for what God provides.

Andrew goes back at the end of November and again in December.  He is still taking the two big seizure meds.  If all goes well, they will start taking him off of those in a few months.  The hope is for him to take a low dose of one (without side effects).

His shoulder popped out of place on the way to Duke, so I need to have Dr. Fleming look at him again before the end of the year.  It has not popped out since.  He can ease it back in himself, but it's not something we are familiar with!

I knew this year would be hard.  Just not this hard.  So much loss.  So many family and friends affected by illness and death.  So many things to do to clear out and clean out.  It's been very overwhelming.  But God has been right here.  He has been here on scary days - and there have been many of them.  He has been here on hard days.   He has been with us when we are exhausted.  He has been right there when people pick a terrible time to complain or accuse or hurt.  He has been with us through it all.  I only hope my eyes will stay open to things I have learned - things I need to pay more attention to and things I need to let go and not make issues.  I hope and pray I will remember in those long, dark hours in the night or day that I need to keep turning it all over to Him.  He wants to take all of the burdens.

So we are so thankful for the things we can share - and the things we cannot. 

Sorry this is overdue.  Thanks for checking on Andrew.  Thanks most of all for praying!

We continue to hold to the HOPE that is eternal ~ through Christ Jesus!  One of my NEW favorite songs by Mercy Me!

"Best News Ever"  Mercy Me  (https://www.youtube.com/watch?v=XyBMEDKiKaI)
 
Some say, "Don't give up"
And hope that your good is good enough
Head down, keep on working
If you could earn it, you deserve it
Some say, "Push on through"
After all, it's the least that you can do
But don't buy, what they're selling
It couldn't be further from the truth
What if I were the one to tell you
That the fight's already been won
Well, I think your day's about to get better
What if I were the one to tell you
That the work's already been done
It's not good news
It's the best news ever
Some say, "Don't ask for help"
God helps the ones who help themselves
Press on, get it right
Otherwise, get left behind
Some say, "He's keeping score"
So try hard, then try and lean on God
Hold up, if this weren't true
Explain to me, what the cross is for
What if I were the one to tell you
That the fight's already been won
Well, I think your day's about to get better
What if I were the one to tell you
That the work's already been done
It's not good news
It's the best news ever
Best news ever
So won't you come
Come all you weary and your burdened
You heavy laden and you hurting
For all of you with nothing left
Come and find rest
What if I were the one to tell you
That the fight's already been won
Well, I think your day's about to get better
What if I were the one to tell you
That the work's already been done
It's not good news
It's the best news ever
Best news ever
It's not good news
It's the best news ever
Best news ever
It's not good news
It's the best news ever










"May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit."  Romans 15:13



































































































































































































































































Sunday, October 7, 2018

Thank you, God, for Grandmother

My precious grandmother died tonight.  My brother just called me.  He woke me up.  My sister and niece were with her.  My sister just called to tell me she died peacefully.  We had prayed specifically for that.  She has had a tougher last few days.  She has not rested like she has been able to do.

I knew today that she would not be here much longer.  But I also thought that weeks ago.  Each time she told me she loved me and kissed my face, I knew it could be the last time.  Today, I told her I loved her; and she struggled to form the words.  So I told her I knew she loved me.  I tried not to cry.  But tears were spilling out of my eyes while I told her I loved her and what a blessing she was.  I wanted to tell her it was okay to go on ahead - that Jesus was going to meet her.  But I didn't.  I just let her know she was an extra special gift.

We talked weeks ago about what happens when one dies - when they know and have accepted Jesus.  She nodded while Pete talked, and she even chimed in a little bit.  Grandmother knew she was going to see Jesus when she died.

I have never seen someone who is at home dying with hospice have so many visitors.  Grandmother had lots.  I told her today that her driveway and yard looked like a parking lot with so many cars.  She has had children and grandchildren and great grandchildren rotating in to help her, along with some wonderful friends and caregivers.  She had her brother visit and other special friends and neighbors.  She has heard people caring for her, even when she could not really respond.  When she could respond, she always said she was just fine.  And she would smile.  And her blue eyes would just twinkle.  I told her that I wish my blue eyes were as pretty as hers.

Grandmother,

I miss you already.  I love you so much.  I remember so many years ago you were having a hard time, and my brother wrote you a card and told you that you were the glue that held our family together.  You took that "glue" title and ran with it.

I remember going to your house and riding the bus or taking a cab to a movie - "The Apple Dumpling Gang" or another Disney or Don Knotts movie.  I remember the Cameo theater.

I remember eating those doughnuts from The Giant supermarket.  They were huge with milk chocolate frosting on them.  That was a huge treat at your house.  Krispy Kreme was later.

I remember you telling us stories about your brothers and sisters.  And other family members.  What a blessing to have been a part of such a big family.  One of your favorite stories to tell me was one of your brothers accidentally put dishwashing soap on his hair instead of hair oil to go out at night.  It rained, and he had little bubbles on top of his head!

I remember so many things about you from when I was little.  But I also remember so much from not long ago.

I called you one time to tell you that my house almost fell apart when Pete had flown to Texas for work.  A pipe burst, my furnace was acting up, we were expecting a blizzard, and my car was very sluggish in starting.  I figured out that my phone would not dial 4's, and most plumbers had a 4 in their phone number!  My washing machine was frozen up, and water was pouring through the light fixture in my dining room!  My friend sent her husband, and Russell came to help me.  You told me that my life sounded like "Little House on the Prairie."  I remember calling you years later, after we laughed so much about some of those things, and telling you one of my boys was really sick.  I told you my life was now more like "Marcus Welby, MD."  We did not laugh as much, but you listened as I told you about one doctor visit or another and how overwhelming it all was.  I remember I was talking to you while I was at a shopping center in Blowing Rock.

I remember calling you one Saturday as I left a cross country meet near Raleigh.  You told me your story about the bird who walked by your bed.  You had been sitting on the edge of your bed and saw a bird walk by.  You rubbed your eyes and looked again.  I told you that he had probably been walking around for a while and was surprised you had just noticed him.  You laughed later telling me how Dad was trying to safely get him out of your house!

So many memories.  So many books you shared, we shared.  I remember taking you to the bookstore when my boys were little and spending an hour or so picking out books.  Then we'd go eat at McDonald's.  I wish we had done that more often.  I am sure you had those books read in a week or less!  The other day, when your words were very few, you asked if I had gotten some more books from your room.

And you loved your puzzles.  I will cherish the framed one you gave me.  I remember that Christmas Eve when most of my family "helped" with your current puzzle.  After 30 minutes, we had placed one piece!  I cry when I think of the pretty puzzle in my gift armoire that I bought you for Christmas this year.  I knew I could not go wrong with books, puzzles, or Precious Moments gifts for you.

And frogs.  You collected frogs.  You finally had to tell us you had enough frogs.  They were coming out of your ears!  I think maybe the frog laundry hamper pushed you over the edge!  But I did bring you that soft stuffed green frog the other week, and I told you to toss it at anyone who got on your nerves.  You never tossed him, and he was still sitting in the window behind your bed.

No one can sew as straight as you!  I will cherish my pillows and, especially, my running t-shirt quilt you and Whitney made me.  I remember you hemmed Andrew's shorts, when he was so little, and they were so long.  I wish I had your sewing skills.  I love that you kept some gifts I made you when I was so little!  You recently gave me a Christmas ornament I made.  I can remember making it and how excited you were.  You kept it all these years and knew to give it back this year...

You always acted like you were so happy and excited to see me!  I remember watching you in the hospital and at home.  When you were able to greet a visitor, that visitor felt like your favorite person.  And you did it again and again!  You opened your eyes so wide and acted like you had been waiting just for them.  I know others felt what I did, and it makes it even more special to me.  You truly loved all of your friends and family.  Everyone was a favorite, and everyone was loved by you.

Lisa had it right today when she said you were in a beautiful room.  What a pretty room with so many windows to see outside and let light in.  We are so thankful you died at home in a pretty room and not somewhere else.  We knew you were happy to be home.

There are so many more things I want you to know.  But my brain is tired, and my eyes have too many tears right now.  So I reserve the right to add to this later.  I just feel sad for me - though I would not wish you back from Jesus for anything.  And I feel so incredibly blessed to be this old and still have my grandmother.  I will remember, and hope I do the same, when your words became so few that you asked about us ~ did I get some books, was Ben paid for mowing your yard, when is Andrew's surgery.  It was never about you.  You were "just fine" - and you meant it.  I love you so much, Grandmother.  I will miss you so much.  Just knowing you were across the hill (and two states over) in Abingdon.  But now I will know you are with Jesus.  And I will see you again.  And that makes Heaven even sweeter today.  I hope you have already seen those you have missed for a long time.  I hope you have seen baby Katelyn and all of those babies in our family that we never met.  Oh, I am so thankful I saw you today.  I love you so much, Grandmother.  I'll read a book and watch a Hallmark movie this week in your honor.

Russell put this song on his facebook.  I just love it.  It's truth.  Here it is for you, Grandmother.  You already know it, so you don't need it.  But we hope those you love who don't yet know Jesus will hear and put their hope in the One living Hope ~ Jesus Christ.  I cannot believe you are gone.  We will celebrate you later this week.  It will be sad not having you there, but we would not take you back from Jesus for anything.  See you soon.

Living Hope
How great the chasm that lay between us
How high the mountain I could not climb
In desperation, I turned to heaven
And spoke Your name into the night
Then through the darkness, Your loving-kindness
Tore through the shadows of my soul
The work is finished, the end is written
Jesus Christ, my living hope
Who could imagine so great a mercy?
What heart could fathom such boundless grace?
The God of ages stepped down from glory
To wear my sin and bear my shame
The cross has spoken, I am forgiven
The King of kings calls me His own
Beautiful Savior, I'm Yours forever
Jesus Christ, my living hope
Hallelujah, praise the One who set me free
Hallelujah, death has lost its grip on me
You have broken every chain
There's salvation in Your name
Jesus Christ, my living hope
Hallelujah, praise the One who set me free
Hallelujah, death has lost its grip on me
You have broken every chain
There's salvation in Your name
Jesus Christ, my living hope
Then came the morning that sealed the promise
Your buried body began to breathe
Out of the silence, the Roaring Lion
Declared the grave has no claim on me
Then came the morning that sealed the promise
Your buried body began to breathe
Out of the silence, the Roaring Lion
Declared the grave has no claim on me
Jesus, Yours is the victory, whoa!
Hallelujah, praise the One who set me free
Hallelujah, death has lost its grip on me
You have broken every chain
There's salvation in Your name
Jesus Christ, my living hope
Hallelujah, praise the One who set me free
Hallelujah, death has lost its grip on me
You have broken every chain
There's salvation in Your name
Jesus Christ, my living hope
Jesus Christ, my living hope
Oh God, You are my living hope

https://www.youtube.com/watch?v=u-1fwZtKJSM

Wednesday, September 19, 2018

Tomorrow ~ 9 years with Diabetes!



It's not really a day to celebrate.  But it is a day/time to remember.  And if I step back and see things clearly, I can see God's hand in the start of this journey - even before this day - and as we have traveled along.

I had just returned from almost a week of travel in Chattanooga, TN.  I got home late Thursday night.  I did not notice anything wrong with Sam on Friday, but I did decide I would take him back to the doctor the next week if he'd had any accidents.  On Saturday evening, he threw up a little bit.  I thought, "Oh no!  A stomach bug!"  I knew if he was sick, I would have to miss my baby niece's baptism Winston the next morning.

He woke up sick, but Will cleaned him up and put him in bed with him.  He threw up again, and Will got me.  I put Sam in the tub and almost gasped.  He looked like a little gray skeleton.  He had lost six of his 30 something pounds.  He did not look like that Friday!

Pete said I had to take him to the ER - not to wait.  He took Andrew and Peter and went on to Winston.  Will had begged to stay with me, and I was so thankful he did...

I remember looking up at the ceiling in the ER and silently pleading with God to not let it be diabetes - something the doctor's booming voice mentioned right away.  I did not know much about diabetes, but I knew we did not want it.  I already had enough stuff, right?  We wouldn't get diabetes TOO, would we?

The answer would be ~ yes.  Yes, we would.







It was a delicate balance - to bring his blood sugar down without throwing his whole body off more.  It was a hard day.  Sam was tired and so thirsty and felt AWFUL.  Will was such a big help.

I remember the days that followed.  I was so exhausted.  Pete and I knew we would never be able to give Sam shots.  Was there any other way?  No.

We both learned and cried and learned and cried more.  I remember asking God to put me back in Chattanooga to come home for a do over.  He did not.







We still give lots of shots.  We hope to get a CGM (continuous glucose monitor) soon.  And a pump after that.  Our endocrinologist has retired, and we have a new one.



We still wish diabetes was not in our family.  It's 24/7.  It's very expensive.  It's draining.  It's old.  But Sam is still here, and that is the most important part.



We know people don't understand.  We did not either.  But we have to ask for help wherever he is.  And we have to keep asking until we find someone to help when we are not there.  Thanks to ALL of you who have helped.  We also have to try to keep explaining to others why we need help.

We have stories of children not diagnosed in time.  We have stories of people who go to sleep and don't wake up again.  We try so hard to keep Sam safe and healthy.





So on this day (nine years later), I would go back to September 19, 2009, and tell myself:  Tomorrow, things are going to change.  You will never sleep the same.  You will never come home without checking blood sugars.  You will never again eat without making sure Sam's blood sugar is checked and carbs are counted.  Make sure you know how to count carbs and figure ratios.  Make sure you can give a shot.  Pray.  Pray a lot.  But before tomorrow, try to get a good night's sleep.  You will need it.

That's what I would say.  And then I would say this:  It will be okay.  You will have people appear and tell you things that will help get you through.  You will be so overwhelmed, but I promise it will get better.  God will provide.  He will.  In all kinds of ways you cannot even imagine.  So don't give up.  You cannot anyway.  You are fighting for your son's life.  Fight with God's help.  Let Him help.  Actually, just give it all to Him.  Let others help.  Make some new friends who understand your new way of life.  And lean on your true friends for strength and encouragement.  Tune out what you don't need.  You have another focus now.  But most of all, focus on God.  He will never leave.  He will send a dog to wake you up on a dangerous night.  He will shake your shoulder if you need to wake up and find a child who desperately needs you.  He will take over when you are too exhausted to wake up to your alarm.  Rest in Him.






And now, I can look back at the scary times He has brought us through.  We will keep on fighting.  And we will keep on depending on Him.  Some of my favorite verses to remember:

Jesus saith unto him, I am the way, the truth, and the life: no man cometh unto the Father, but by me."    John 14:6

Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus."  Philippians 4:6,7

“But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me."  II Corinthians 12:9

“I can do all things through Christ which strengtheneth me.”  Philippians 4:13

"Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”  Joshua 1:9

So tomorrow, we will "celebrate" nine years of God's faithfulness to our family!



 On Saturday, October 6, at 8:30 am, we will walk to bring awareness to Type 1 diabetes.  We will love on and encourage those fighting it.  And we will put those warning signs out there for ones who don't yet know.  Link to sign up:          

 https://www2.jdrf.org/site/TR?fr_id=7595&pg=personal&px=10967372













Monday, September 3, 2018

Update on September 3, 2018


April D. Green Photography ~ Moses Cone Estate ~ June 2018



This has been a very quiet blog from a very tired author!  This will be a short update, and I will update again soon.  We so appreciate those who check on us, and we especially appreciate those who pray!

Andrew goes back to the neurosurgeon on September 14.  This has been a tough little stretch, and we are anxious to get back and get a plan and a timetable.  He can run again - earlier than they originally said.  He is staying in Abingdon right now with my sister and her family.  They have kept him very busy during this waiting time.  He has been able to do some light work and go on rock deliveries.  My dad and nephew have kept him occupied painting my nephew's house.  And they have taken him to do some fun things.  Things he would not be doing at home!  He is also able to visit Grandmother lots more than I am and gives me good updates.  She is home with Hospice.  Andrew ran with Laura, and he has run with Waylon, her energetic dog.  He has only had one episode, and it was milder than usual.  We appreciate their love and help for him.  He has even visited Virginia Tech and watched my nephew finish a 30 mile trail run in Damascus.

The other boys are good.  Everyone has stuff going on, and I just pray...a lot.  I open my eyes in the morning and close them again praying for these boys.  And I pray for them every night when I crawl in bed.  And many many times in between.  Sam starts back his reading at ASU soon.  Of course I feel like it's crunch time, since he is in 8th grade.  But I just keep praying.

Maybe your life is not perfect right now.  Maybe you feel like nothing is going right.  Just keep praying.  That's what I am doing.  And looking in my Bible for my answers.  I have so much to be thankful for, and I have some big things hanging over my head.  Some days I dread getting out of bed.  I am trying to have that "be still" time and get sidetracked so easily - with big stuff.  Really big stuff.  So I keep trying and praying...a lot.  I know God is there.  Some days He just puts something right in front of my nose, and I appreciate those reminders that only He and I know about!

We are clearing out Pop and Sarah's house in a couple of weeks.  The Floyd house has sold, and we are moving things out.  If you see anything for sale on my Facebook page, please buy it or share with someone who may!  I have a lot to clear out to bring some of her furniture for her.  We don't know what will happen in the coming months, but some things will come to our house and go in Sam's room instead of storage.  So Sam's room has been spread ALL over the house.  That's why I told Pete I would get rid of a lot!  He is running the donate vehicle - to Hebron or Goodwill.  I have to clear out Sam's whole closet too!  Will has no idea (yet) that most of his room will be moved out in the next week or so to make room for some furniture Pop made and an old spindle bed that was Pete's grandmother's.  He will love it...when I get it all done!  As long as I keep him in cotton sheets and covers with good pillows, he is good.

It was so sad to go into the house today with Pop not there.  We talk about him every single day many many (many) times.  And that has hindered my grief in a way.  So today, looking at the spot where his hospital bed was and passing the dumpsters a few miles from his house where I almost turned around and went back (to his house) on February 8 brought some tears.  I did not turn around that day.  I had to get home to Sam and Andrew.  Pete had arrived in my car, and I stayed a while and went home.  I was coming back in a couple of days, but I knew when I kissed him and told him I loved him, it was the last time on this earth.  He had gone downhill so fast in the few days I was there.  It will always be one of my hardest and most blessed weeks.  It was an honor and privilege to care for him for a little tiny bit, and he was the best patient ever.  I got another of his LL Bean totes for Peter with the same initials.  I am thankful he is in Heaven and not in pain.  I could hear his voice and see his face, and I just let myself miss him (without all of the extra stuff surrounding it). 

And speaking of good patients, my grandmother is just as sweet and precious as can be.  If she is able, she lights up when a visitor steps up to her bed; and her blue eyes just sparkle.  She makes everyone feel like they are a favorite ~ without making anyone feel any less!  She says she is "just fine" when she answers to everyone asking how she is.  She kissed me and told me she loves me last week.  I have not been this week and plan to see her tomorrow.  She was able to see and enjoy my extra special pictures of the boys I printed for her.  My grandmother is going to Heaven.  Pete talked to her a couple of weeks ago - soon after she came home with Hospice.  Pete, Sarah, Sam, Will, Peter, Julianna, and I went to see her on a Saturday morning.  Pete read to her and asked her questions -which she was able to answer without hesitation.  So even though this time is very very hard, there is peace and hope for Grandmother...and for all of us.

Romans 12:12 says, "Be joyful in hope, patient in affliction, faithful in prayer." I am trying to keep this in the front of my mind every minute of every day.  I know God is here.  And He is faithful.  And He loves me.  Why else would He send Jesus?  So thankful for Him.

Thanks for reading and for praying.





Thursday, July 12, 2018

Andrew Update ~ July 12, 2018

Instead of the excitement of The Bear, we are here at Duke.  I thought about the nice cool air on top of Grandfather Mountain.  The excitement.  The anticipation of seeing the first runner and looking to see who it is!  The year Andrew won!  The year Will decided to run and got 11th after riding his bike a lot.  Hiking up the trail and walking down the road.  Seeing tons of friends we don't see often and making new ones.  We really missed it tonight, but we hope others had fun.  We hope to be back next year.

We will miss the marathon too on Saturday.  Andrew and his dad and Peter have helped at the finish with the food and drinks for as long as I can remember.  Pete did it and then started taking the boys.  They loved helping their dad and Coach Curcio.  I took over a few years ago and had such fun.

I have been taking up entirely too much space on facebook, so I thought I would write an update and then update a little bit there.  It's past my bedtime already, so I will try to make this short!

We got here Tuesday and came to Andrew's pre op appointment.  There seemed to be confusion on whether or not he was going to be admitted Tuesday.  We finally were told he would be, so we went over to the main hospital (from the clinics) and were put on the neuro floor.

We were there and watched a whole movie on Pete's lap top, while we waited for someone to talk to us.  We had one nurse tell us he was leaving soon, so another nurse came in near the end of the movie.

I left around 9:00, and Pete fell asleep.  Before I left, I told two nurses I had Andrew's meds and was not sure what they were going to do.  They said they would use meds from the pharmacy, and I knew that; but we always bring his medications.  I don't think he had any seizure meds on Tuesday night.  And I don't know if that was planned, but I was surprised because they did not want him to have seizures before or during the placement of the electrodes ~ the brain surgery.

So on Wednesday, I thought to ask Andrew if he'd had a shower the night before.  He had not.  He was supposed to use special antibiotic sponges if we had stayed at the hotel.  I told the nurse.  She got him some bottled stuff and a towel, so he could take a shower in the bathroom in his room.  He had to be super careful because he did already have an IV.  I was not feeling really good at that point, and I called Pete to bring a hair dryer; because he had a little bit of time before they were taking him to get ready for surgery.

Pete brought it, and I dried Andrew's hair.  He was sitting in the bed, and a doctor came in to talk to him.  I heard him draw a big breath.  I heard him start another, and I told the doctor he was getting ready to have a seizure.  He did.  It was awful.  A really bad one.  No one came in.  The doctor was on one side, and I was on the other talking to him and praying for him.  When it ended, he rolled over in pain.  I knew it was pain.  I told the doctor something was not right and that I hoped he had not dislocated his shoulder.

He had.  His right shoulder...again.  Just like last time we were here.  Fast forward past many conversations and hours of terrible pain, and they set Andrew's shoulder in place when he was put to sleep for his original surgery.  He went in around 12.  It was hard to leave him.  But the doctor prayed a wonderful prayer and even prayed scripture.  That made it easier.  But it was hard to let him go.

We had a few updates while in the waiting room.  It took much longer than we thought and were told.  But we knew we were getting updates.  Another fast forward to talking to the neurosurgeon.  Dr. Haglund said all of the electrodes went in fine...except one.  They had to get it back out.  So they had to cut a hole in his skull to get it out.  I felt like I was in the Twilight Zone, but I also felt calm (so thanks for the prayers).  Dr. Haglund stayed until they got Andrew awake, so he could check his left side and also make sure he had not had extra bleeding.  Then Andrew was moved to neuro ICU and had the VIP room on the end on the 8th floor.  It had the prettiest view.  He slept well and was up pretty early.

By the time I got there about 7:30, Andrew was sound asleep but had been up and walked a loop around the ICU with his nurse.  He ate a tiny bit of fruit and drank some chocolate milk.  He slept and then walked two more loops before the techs hooked him up to the monitors.

Then they put him in a smaller bed and moved him back to the EMU (epilepsy monitoring unit) ~ in the same room as last fall!

He has slept a lot today and eaten very little.  His head hurt just a little bit.  His shoulder feels good, so far.

There was talk of unwrapping his head and pulling one electrode out just a tiny bit - but that would be bedside.  As a man, who was in his surgery yesterday, started to unwrap his head, I asked if they were still doing it.  Our nurse had just told us they did not have to after all.  Fast forward again.  The man called his boss who called someone else.  And Andrew's head stayed wrapped.

He also is not supposed to take all of his meds tonight.  So we will see.  He may start having seizures tonight.  They don't want them lumped together, so we are praying there is some space and rest in between.  But...that is part of the reason we are here.  The seizures are not on anyone's schedule!

Andrew was up a lot Tuesday night getting an MRI and CT and other tests.  So the lack of sleep and medicine probably set him off.  He had a plan to drink caffeine and not sleep, so we will see.

Thanks for praying.  God has given us assurance when we have needed it.  We don't know what we would do without Him.

I am off to bed.  Pete is returning to Boone Saturday to conduct a funeral.  He will stay for Sunday morning services and then come back.  Whitney is coming to stay with us while he is gone.  Sam is having way too much fun in Bristol and Abingdon.  My grandmother is sick and in the hospital, so everyone is stretched a little bit thin there.  I appreciate their help.  We appreciate everyone's help and prayers.  Especially those prayers.

Part of what Dr. Haglund prayed was Philippians 4.  We also just had it read at church, and verse 8 really spoke to me.  But 6 & 7 really helped yesterday!

Thanks again for praying.

We will be here in the same place until next Wednesday, the 18th, when the electrodes will surgically be removed.  Then he will have to stay another couple of days to recover.  We hope to find out in a few weeks if they think the big surgery will help him.  He will also have follow up for his shoulder.

Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.

Meditate on These Things

Finally, brethren, whatever things are true, whatever things are noble, whatever things are just, whatever things are pure, whatever things are lovely, whatever things are of good report, if there is any virtue and if there is anything praiseworthy—meditate on these things. The things which you learned and received and heard and saw in me, these do, and the God of peace will be with you.  Philippians 4:6-9