Thursday, March 10, 2011

On top of the roller coaster ride...

I read a report from Dr. Patel today that pretty much says he thinks Andrew has the CVID and plans to begin IVIG or SQIG treatment soon - after we get those other labs! This is not official for me since I have not talked to Dr. Patel. But it seems the labs were the same. I am apprehensive and anxious and am still trying to be accepting and somewhat thankful. On Focus on the Family today, they were talking to a family who was on Extreme Home Makeover. I listened until the static got it when I got near the school pick up line. They were thankful for the diagnosis their daughter finally received even though it was quite devastating and the "hidden" blessings that they realized saved her life before she was diagnosed - and they realized the danger she would have been in. So we can choose to whine and complain and be sorrowful, or we can keep singing and praising and being thankful - no matter what. It is a decision I will have to constantly make I am sure - until it comes easily.

Sam is doing better - going up and down a little here and there. His mother is trying to figure out a pattern and just go with it. No pattern to report to the diabetes nurse yet, but I am finding some places where he tends to do one thing or another - unless he has a little bug or something! He keeps me on my toes - all of us really. But he is soooooo good. He was talking wistfully about a cupcake he had at preschool last year - before the diabetes, he said. I am so thankful he does so well with his accommodations. He really does.

Will was bragged on by one of his teachers, and it was such an encouragement to me. He does not have ADD or anything like that, but he sure does not fit into the "school mode" easily. This teacher was complimenting him on a great project - following directions, tying everything in, and creating a story himself that went right along with everything. I was so happy to hear it and told her so. My old boss and dear friend always said Will would do well in an experiential learning environment, and I hope he flourishes taking some classes next year that he is so excited about - and I hope the state does not cut them!!!!! This is such an answer to many prayers that he will find his way where he is. He is growing so much. This afternoon he ran into the grocery store alone to get a few things we needed because I did not feel well. He also checked on me every few minutes once we were home.

Peter and Andrew just got summer jobs! They are so excited, and I am so excited for them. Will is going to help me with Sam. This will be a good experience for all of them.

Thanks for reading. Thanks for praying. More to come soon...

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