Andrew's treatment went okay. The first needle was either dull or hit a bad spot causing me to almost panic, but we put on more lidocaine; and Andrew put the needles in the other two sites. We clamped off the one with the bad needle or spot and just did not use it. We did not see or feel any leaks, and the infusion took a little over two hours. Andrew's help in putting in the needles and taking them out (by far the worst part of all of this!) is really a blessing and a huge step forward for him when he takes over. It's awful to stick needles into your children (constantly) when you don't have that gift - but God is helping us so much. It's evident and very very obvious.
We go back to Dr. Patel June 2, and we will get his labs then. I will let you know how they are. Thanks so much for praying. We appreciate the prayers so much. We trust that we are doing what is right for Andrew and that he will be good to go soon. I have struggled with seeing his struggles. And I see so much more than I should. So I am constantly having to check myself, my perspective, etc.
We were able to go see a preacher we watch on TV every Sunday morning while we get ready for church. This church was different than any the boys have been to before. There was great music, and we could feel the presence of the Lord. Many things were said. I scribbled some down so I would not forget. One was (without my notes!) that "I will prosper in the day of my affliction." I will have to write them in later. But what he was saying spoke to me about the "waiting room" that I still feel like I am in. It's a lot like "the storm" but also very different. I guess it's my way of seeing a bigger picture (not His - the one we cannot see but surely trust is there). And He gives me those things to let me see things more for what they are instead of what I make them to be. And Andrew is working hard and will thrive in this time of affliction. So many things do not come easily for him that are so easy for others, but I know that I have to turn all of that over to God. Constantly.
Thanks again so much for the prayers. I will let you know his next numbers!
Wendi
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