Still waiting to hear about Andrew's other tests. But I think that it may be that they were the same. I think the doctor would have called with great news or very different news than what he anticipated. I have dared to look on-line at some things and read some chats about treatment. I even printed out the preferred drug list from the insurance company but cannot seem to find the drugs he mentioned (without any names!). We still have a couple of weeks before we test the shot he had.
Andrew got really really sick this week. He had a cough that came on very quickly and meanly. So Dr. Zimmerman gave him an antibiotic and Prednisone to really try to knock it out - to go with his other medications and inhalers. Yesterday he was purple when I picked him up! And then he turned dark red at home and started running a 103+ fever. I gave him ibuprofen (after a call to Carla to check on liver stuff) and then put him in bed with Pete. He was miserable. His fever broke in the night, but I was concerned he may have the flu. So I made him go to work with me and shut him in my office while I went to a meeting. We did a flu test that was negative, but there have been false negatives. I thought he would be exhausted, but he felt better and looked better as the day went on. We saw Dr. Zimmerman again, and then Andrew just stayed until 2 when I went to get the other boys. Will had taken care of Sam's shot for me (again!), so that was a relief as Pete had meetings all day.
Dr. Zimmerman called the pulmonologist, and they added another antibiotic and Tamiflu just in case! Dr. Black probably knows more about the immunology than we do at this point, so I was so glad Dr. Zimmerman called him. Anyway, they are treating him very aggressively, and I am so glad that they are taking this very seriously. Andrew has already lost about six pounds in one week! Not again!
BUT, he did not have a seizure; and that was a huge encouragement that I needed today. I know God is with us and that He cares and He knows what is going on. I just need to rest in that. Really rest.
Thanks for praying. Still in the "waiting room" - seems like forever, but I keep moving around. I can see the room. I can feel the prayers. And some very very specific prayers were answered today from my "text team." Thank you!
"Arms of Love" Amy Grant
Lord, I'm really glad you're here
Hope You feel the same
When You see all my fear
And how I fail
I fall sometimes
It's hard to walk in shifting sand
I miss the rock and find
I've nowhere left to stand
I start to cry
Lord, please help me
Raise my hand, so You can pick me up
Hold me close, hold me tighter
[Chorus:]
I have found a place where I can hide
It's safe inside
Your arms of love
Like a child who's held throughout a storm
You keep me warm
In your arms of love
Storms will come and storms will go
Wonder just how many storms
It takes until I finally know
You're here always
Even when my skies are far from gray,
I can stay
Teach me to stay there
Chorus
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