Friday, February 11, 2011
An update on Andrew
I talked to Dr. Patel, the immunologist, this morning first thing. I was surprised to hear from him so soon. He said a lot of stuff and was very nice but very concerned about some of Andrew's lab work. I was listening and scribbling while in the Honda waiting room. He only gave me one number - the IGG. Andrew's is 187. Normal is 550 to 1600. Dr. Patel said it was really low - that he has never seen anyone up and walking around with such a low number.
So he wanted to see Andrew back within a week. We go back next Thursday to their clinic. They will redo this test, obviously. And then they will give Andrew a vaccine (some very long name) and check him again in 3-4 weeks to see how his body reacted to what they gave him. Evidently the earlier labs showed that his immune system had a "flat" response to things. As I understood, his immune system did not show antibodies to bacteria and other things - and it should have.
The treatment for this could be an infusion - how much, of what, and how many times I do not know at all.
I did look up IGG deficiency and saw a lot of things Andrew has - autoimmune diseases/disorders, increased sinusitis and asthma, etc.
I think Andrew was probably never tested for this because he has not seemed sick enough - if that makes sense. So I hope and pray that we will find out what it is, and his life can become so much better! Since I don't know a lot, I need to choose to be optimistic. I know there are lots of things to read, but they are over my head. The doctor said he would give me information on Thursday.
I prayed very specifically yesterday for Andrew - that I could once again hand him back over to God. I do and then promptly take him back! I prayed that I would do whatever I was supposed to do and leave the rest up to God - and turn over the worry, frustration, fear, etc. that has been bogging me down.
Andrew has taken the news in stride. He will only worry about missing school and running. So we will work around that. His counselor has already been in touch with me and said the school will work with whatever.
Thank you so much for praying for Andrew. Although I do feel a little anxious, I felt better as the day went on. If he has something going on, I just want to find it and take care of it. I am hoping what it is can be treated easily, and that is what I will continue to pray for Andrew.
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Sam - Sam has been having some very hard to figure out readings. His insulin seems to be taking a long time to kick in resulting in confusing and high numbers. Then he has been getting really low some. Most of his injections are for what he is getting ready to eat, and we are checking his bsl a lot - and trying to do it at a time to get an accurate reading. But it still does not make sense! So I have put one pen of insulin back in the fridge and will see if something is wrong with it? I can call the nurse, but I have been trying to figure out a pattern. We were doing so well for a few weeks! Please just pray that Sam's stuff becomes more consistent but that we do what we should for him no matter what! We thank the Lord for all of the extra test strips he has been sending our way! They are helping tremendously!
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