Andrew ~ Appointment with the Immunologist

Andrew went to a new doctor today, an immunologist, in Charlotte. We really like him ~ we were sent there by the pulmonologist that we really like ~ Dr. Black. Dr. Patel’s wife works with Dr. Black, and Dr. Black had talked to Dr. Patel about Andrew. We are just so thankful they have taken an interest in Andrew.

We went over tons of medical history, but he already had a pretty good summary based on what I had sent to Dr. Black a few months ago. I took lots more information, including Andrew’s lipodystrophy notebook full of pictures of the progression and then halting of that disease. I also took labs that have always bothered Carla ~ and yes, they seemed to interest him! We stuck to basics (because they are overwhelming enough – even for me to go over quickly – though I think Dr. Adams can still do a better job on the spot!), and he gave me his card with his email to send him any other info I may think of later – how well he knows people like me!

They took eight vials of blood and won’t have results for weeks. We go back in four weeks to their clinic. He told me what he would look for and why – no specifics mentioned today because while he is looking for more information in the lab work, he had no names to give me today. And then he let me tell him of my most pressing concerns and seemed to understand what was most important now. I also told him we want to keep Andrew well so he can avoid the seizures if possible and grow as much as possible. He asked about growth hormone, and that opportunity may have been earlier but could not be taken then. And I really think that was probably the right thing for Andrew.

I told him we were so appreciative that they had taken an interest in Andrew. He and Dr. Black have already done some extra research on things pertaining to Andrew. I know for a fact because they looked up some of his specifics and could hardly find any information. I know that too! They both seem very intelligent and able to put things together, so we will see.

I did not ask to see an immunologist, so I believe God has set this up for us. And I trust that no matter what, something good will come from it. Everyone in the whole office was super nice and helpful.

A praise ~ Andrew’s height and weight were better than they have ever been! Please keep praying for this!

We are so thankful that Whitney was able to go with us. It made finding the place, listening and answering, and coming back home in a whirlwind much easier!

Sam is doing much better now too. He has had some lower numbers since we started giving his insulin before he eats, but that is to be expected. He had a 37 at school the other day, but his teachers had already given him chocolate milk as they called me – the perfect thing to do! While that is certainly a scary number, we are thankful he has done well - even with those numbers. He has had two crazy days with some high numbers, but we just keep trying and trying. It can be very frustrating, but overall we feel his numbers are much better.

Thanks for praying!